Reminds you of the railway station, the crowd and cacophony, the chai and the stink. Train whistles, the incomprehensible announcements and the strain to listen for your own train. But this is a different waiting room.
Here only those people wait, whose trains have derailed, or are about to. They are trying to repair the tracks, push and pull to get the train back on track and somehow make it run, so they can leave for home. A few never do.
Here they dont say ” train no so and so has arrived on platform number so and so.” Here it is ” Bed no 102″ and Kamble and Banerjee, the names and the numbers, and the call to feed or meet the doctor or sign something you have not read.
I am in the waiting room of an ICU. All around me is chaos. Sea of people, waiting to catch a glimpse of their loved ones, waiting for that ray of hope, that word from the doctor that can change despair to a smile or bring a frown and a tear. Noisy, crying, sharing, yet so distant from it all. Hearing it all, but not absorbing.
Hospitals are a part of life. And death. I am at the same place I was slightly more than two years ago. Same hospital, same ICU, same waiting room. I lost Baba here. He was already lost, but here I lost his physical being. All around me are faces, in despair, but still hopeful as they cross the nights of nightmares.
When you think it cant get any worse, it does. And we get used to that and then there is a new low. How much the human mind can accept and get on with life, feels like a trial and error test.
Why does she have to suffer so much? In the past so many years, I have seen her lose her speech and her smile, her walk and her zest for life. A vegetable, that breathes and swallows, with a beating heart. That is about it. Just pain and more pain, which she doesn’t feel, or maybe feels and does not express. Cancers, and then free from cancers. But not from this hell called dependence. Not from this journey that is a constant struggle for survival.
Who will I take home from here, a whole being or a part? A person who always smiled at me, now closes her eyes and shrinks away as I talk to her, or touch her.
Do your job, dont worry about the consequences. I was reminded today. Do your best, dont expect anything. Maybe that is the learning. And emotions? That are ready to flow, that have to be pushed back because there is so much to be done.
I try to work. In an effort to remain sane. Not break. I have to be strong and stronger, specially when I am powerless. Someone else pulls the strings and we dance. I do- the biggest fallacy. Who are we? Who am I? My face is expressionless, as I listen to the doctor’s verdict. Impassive but with a storm inside.
Life sucks. Death sucks more. But maybe it is the end of suffering, pain and despair. But can’t it be painless? Among so much pain and pleasure, something goes on- that they call life, as it sits in the waiting room, for death. Somebody give respite from it all, she needs to rest. In peace.
On this Mother’s Day, sharing extracts from my mom’s diary. Her journey through cancer and how the mind won over disease. This is as is taken, no word changed, and most of it is in Hindi. I can’t describe the emotions that I went through while copying this. It is a story of hope that overcomes depression. I love you Mom.
25 May, 2008, Noida
कठिन रोग-ग्रस्त अवसादमय मन लेकर जब मैं हताशा के समुद्र में डूबती उबर रही थी, झिलमिल ने मेरे हाथो में कागज क़लम थमा दिया – “माँ, जो तुम्हारे मन में भाव आए, उसे कागज में उँडेल दो, भाषा की चिन्ता मत करो। मन की भावनाओं को दबा कर मत रखो ।
डायरी लिखने की आदत मेरी पहले भी थी। लेकिन पता नहीं क्यों मुझे लिखने की इच्छा ही नहीं हो रही थी।
समय जैसे ठहर सा गया था। समय एक सूनी सड़क की तरह मेरे सामने फैला हुआ था।आगे बढ़ने का मेरे पास कोई रास्ता नही था। रात, आधी रात, भोर, सुबह, फिर दोपहर, लम्बी शाम काटे नही कटते।
बीच बीच में उठकर बैठना, फिर लेट जाना यही क्या मेरी नियति थी? Condemned cell में जीवन यापन करने वाले कैदी की जिंदगी? निर्वासित यक्ष जो हमेशा अल्का पुरी की याद में डूबा रहता था, की तरह, मैं केवल पुराने दिनों को याद करती रहती थी। पुराने मतलब, बहुत पुराने, बचपन की यादें, जवानी की भूलें, पुराने गानों के बोल, पुरानी फिल्में याद आते रहते।
30 May, 2008
कल मेरा जन्मदिन था। मेरा जन्मदिन हमेशा ही बेरंग, बिना उत्साह के, बिना किसी समारोह के आता है, और चुपचाप बिना आवाज़ किये चला जाता है। आखिर जन्मदिन का मतलब तो यही है कि मैं मृत्युदिन के थोड़े और करीब आ गयी हूँ। कुछ कोषाणु अपने ही शरीर में आतंकवादियों कि तरह आतताई बन जाते हैं और स्वयं उसी को नष्ट करने में लग जाते हैं। युद्ध! महायुद्ध! महारोग से युद्ध! रुग्न अंग काट के निकाल दो, जहर से शरीर को भर दो ताकि वह विषाक्त अणु नष्ट हो जाये, फिर भयंकर किरणों से उस भाग को दग्ध कर दो। कभी समझ में नहीं आया कि रोग अधिक दारुण हैं कि उसका उपचार।
15 June, 2008
पूरा सप्ताह प्रिंटआउट पढ़ने में लगाया। कैंसर के स्टेज, कैंसर रोगी के जीवन की अवधि, इसके कारण व उपचार। क्षतविक्षत अंग, केशहीन सिर, दुर्बल शक्तिहीन शरीर। यह जगत हैं स्वाभाविक स्वस्थ स्त्रियों का, पर हमारा संसार दूसरा हैं जहाँ हम अस्पतालों में हारे हुए जुआरी सा चेहरा लेकर डॉक्टर का इंतज़ार करते रहते हैं।
20 July 2008
इस विपदा में भगवान को याद करना, प्रार्थना करना, कुछ अवसरवादी सा नहीं लगेगा क्या? बाहरी मंदिर में कभी पूजा पाठ, जप-तप नहीं किया। पुकारे भी तो किसको पुकारे, श्रीकृष्ण, संतोषी माँ, काली माता, या शिवजी ? क्या यह सचमुच कर्मफल हैं? क्या मैं आत्महत्या कर लू? किसी भी तरह, पानी में डूबकर, फांसी लगाकर? मगर फांसी लगाने लायक पटुता भी मुझमे नहीं हैं। भगवान् के सामने असंख्य आवेदनपत्र हैं, क्या मेरी वाली अस्पष्ट पुकार वैकुण्ठ या कैलाश तक पहुंच पायेगी?
30 July 2008
मेरी बीमारी ने मेरा सारा ध्यान ले लिया हैं। मुझे इसके आगे किसी की परवाह नहीं हैं, चाहे किसी राष्ट्र पर बम गिरे या आतंकवादी बम फेंके। बाढ़, तूफ़ान, भूकम्प, यह सब मेरे दुःख के आगे नगण्य हो गए हैं। मुझे हमेशा, हर क्षण अपने अलगाव, अपनी पृथकता का बोध होता हैं। मैं सबसे अलग हूँ।
4 August 2008
अब मैं नकारने की स्टेज से आगे आ गयी हूँ, स्वीकारने पर। जैसा भी रोग हैं, अब तो उससे जूझना ही पढ़ेगा। जोधपुर से रोज़ दोस्तों के फ़ोन आ रहे हैं। सब सचकित हैं. सशंकित हैं, दुखी हैं। “ना काहू से दोस्ती, ना काहू से बैर” सिद्धांत पर जीवन यापन करने वाली, स्वच्छ, राग द्वेष से परे, जीवन व्यतीत करने वाली मैं उनके शुभ कामनाओ के भार से दबी जा रही हूँ। क्या सब लोग मुझे इतना चाहते हैं, यह तो मैं जानती भी नहीं थी।
सोचती हूँ मैं अकेली ही दुखियारी नहीं हूँ। मुझसे भी बदतर लोग हैं। यदि मुझमे यह बीमारी सहन करने की शक्ति नहीं होती तो भगवान् मुझे यह रोग नहीं देता। यह मेरी परीक्षा का समय हैं। मुझे इसमें उत्तीर्ण होना ही होगा। यदि दो चार वर्ष और जीवन ही हैं तो उसे हंस हंसकर ही व्यतीत करुँगी। लोगो की करूणा या दयापूर्ण दृष्टि मुझे सहन नहीं होगी। मैं फिर सीधी खडी होकर माथा ऊँचा करके चलूँगी। किसी अज्ञात कवि की इस कविता ने मुझे सहारा दिया
I asked the Lord for a bunch of fresh flowers but instead he gave me ugly cactus with many thorns
I asked the Lord for some beautiful butterflies but instead he gave me many ugly and dreadful worms
I was threatened, I was disappointed, I mourned.
But after many days suddenly I saw the cactus bloom with many beautiful flowers flying in the spring wind.
God’s way is the best way.
थी कभी चाँद तक अपनी उड़ान अब ये धूल ये सड़क अपना जहान
From the day he was born he was tuned to US timings, sleep in the day, play in the night. I remember my days in a haze, get up after a sleepless night, go to office, sleep whenever possible, especially if there was a presentation ( sorry boss). I figured quite early that lectures and meetings are a great place to take a nap. Came home tired to a more tired mom or mil who had been looking after my baby and now needed a break, so played with kiddo, while the man of the house watched TV. His diet was small, he would eat very little, sleep for an hour, then was refreshed enough to want to play. At 11 pm in the night, all I wanted was a bed and a pillow, and my baby used to be wide awake. In wee hours after midnight, I would be irritated enough to wake up the husband sleeping like a baby to help the baby sleep. I had this fundamental issue of not being able to sleep while my son was awake ( which occurred till he was almost 18), and after catching a few winks, it was time to take my tired bones to the next grueling day.
One night he started crying and just would not stop. With no prior experience we had no idea what was wrong, tried walking him around on the shoulder, taking turns, but he refused to cease his howling. Hungry, stomach ache, rashes, no. Finally we were out on the road in front of the house along with the startled dogs who till then had एकछत्र राज of the lonely streets. The dogs and the baby wailed in unison, till the opera reached its crescendo and we knocked on the friendly neighborhood doctors home at 2 am in the night. He diagnosed the problem as an aching ear, a few drops of the magic potion and he was fit as a fiddle, went off to sleep and we left the sleepy dogs lie.
We actually had two babies growing up together, my son and my sil’s daughter who was a few months junior. With both kids in the same pram, looking almost twin-like since my son, though was older, was thinner. All ladies coochie-cood the babies and would invariably ask whether they were twins. We had fun answering, no, 4 months apart, and leaving them with their open mouths and feverishly working brains on how that was scientifically possible.
90’s was pre diaper era when American products were not so easily available and of course the moms and mils were firmly against the use of any such contraption. Delhi being pretty cold in winters, and without diapers and no central heating, all we did through the night was change pants. By the time it was morning, there wasn’t a place to walk at home where a wet pant wasn’t unsuccessfully trying to dry.
Coming home from office, he would be on the bed mostly wearing nothing more than a shirt on, feverishly cycling away with his hands and feet and giggling away only to gurgle when food was stuffed in his mouth, breathe, swallow and giggle again. I can close my eyes and see the sight again, that made my days so wonderful, despite wet pants and tired bones and sleep deprivation.
As he learnt walking, the world developed a different set of problems. He walked with his head held high and invariably tripped over every obstacle in his path and his chin, knees and palms were constantly grazed and red. Till I decided to get him a helmet and knee pads.
My baby did not like meeting strangers. Once I took him to office and as expected everyone wanted to carry him and he responded by shouting at the top of his voice for the rest of the day. At home he marked his boundaries. If we had visitors, he would remain in the bedroom and not venture out while he stared unblinking at the aliens who dared set foot in his space. No amount of cajoling would pull him out of his लक्ष्मण रेखा. Strong attempts just resulted in further howling so.. Take him to any crowded place, and he would cling to me or his Dad and cry.
He learnt his tantrums from his parents. When he wanted a toy or book in the shop, ( this was once or twice), and I said no, he lay down on the road and raised hell in order to get me to buy it. But me being me, I would pull him back home, gave him a strong lecture on how a child should behave and generally pulled him up for the childish behaviour that a child should not be doing. He would stare at me with big doleful teary eyes during such sessions or व्यथित eyes as my dad would say. Needless to say, he did not repeat it too often, who wants a hiding from a strict parent. He soon learnt that the way to get anything is via his dad, who would melt easily.
His first day at the creche, he was flabbergasted to be left alone and cried for the whole 3 hrs, he at the creche and my mom at home. When she went back to pick him up, he was standing precisely where she had left him, with a teary wet face, holding his bag and bottle firmly. Both laughed and cried after the reunion and held on to each other tightly. Next day, when he was being left, the look on his face said- what you are betraying me again? and turned his back to my mom and slowly started adjusting. It took my mom more time to adjust than him. The first new slang he learnt from his toddler friends was “कुत्ते का पित्ता” as he proudly kept repeating at home.
The love, the hugs, the playing with almost everything, be it vegetable peels, waste papers, clothes in the cupboard or while washing, kitchen utensils, the jumping to the lap, pulling my ears, learning to walk and then run, falling down, crying, picking himself up and walking again. The hiding in the clothes cupboard or in the washing machine tub and the “boo” on being discovered, the forever unkempt house with nothing at its designated place. The first words, “dadadada” and then the अनर्गल प्रलाप at the top of his voice. His own created vocabulary, spoon was “tinta” and curd was “din-din”, camel- ऊँट being टून्, and Aarti, my sil, was “तेते”. The sicknesses, the cough and the vomiting, the looking at me with “when will I feel better” expression, but being brave during the injections. I can go on and on, but I have crossed my self imposed word limit, so more later..
Logically speaking, I should start with how I met and started flirting with my current husband. But that is for another time. Today I want to talk about some of the hilarious events leading to the inter-caste-marriage that we had. Remember that 90’s was a conservative period for the smaller towns in India and divorces and love-marriages were spoken in shushed-tones.
Once upon a time in 1988-89, Anuraag and I decided, we will get married. To each other. Some day. We did not talk about it at home, of course. Who does that? My mom, being a die-hard Bengali and strongly influenced by her peer group, when I was in III year, decided that it was time for some prospective grooms to meet me. I know there were people who helped influence her judgment about the girls-growing-up-and-getting-out-of-hand (and whose daughters wanted to do nothing in life except marry and settle down). I thank such interfering bees from the bottom of my shoe, who have nothing better to do than match-making for all kids in the block.
Well, to continue the story, some ill-meaning neighbor brought a “रिश्ता” and I was asked to meet the guy. I, as expected, said NO. But maybe not loudly enough, because the family turned up officially to “see me” one evening. My mom begged me not to create a scene so I complied. This guy was tall and broad, his wrist was probably twice mine (remember you are supposed to keep your eyes demurely down- all you get to see is the hands and the lower anatomy of the fellow). Having decided his fate a priori, I went and say Hello and sat down to talk to him. No, I did not wear a sari, or take a tray-full of samosas and tea. My parents and his parents, delicately left us alone and went to the bedroom to talk. Though I could bore anyone with my incessant conversation, I was tongue-tied for a while and we made some formal talk, what do you do, where do you study, what are your hobbies kind. Then he asked me what do you want to do. And I saw light. I told him I wanted to be the prime minister of India followed by an 5 minute extempore of why I believed I was right for the job (the gift of glib came handy). After my nonstop nonsense, I never quite figured out why he was in such a hurry to leave. My parents were so happy that we had so much in common to talk about- little did they know how I scared him away.
With that safely out-of-the-way, life continued sedately for a while. A few days later, I heard another name, someone else was again coming for the same ritual. The day is etched in my mind. My dad was shaving. Mom was laying out breakfast and said they were going to come in the evening. And I burst out- I am not interested. I don’t want to meet anyone. And she asked- why? In 80’s 90’s the standard question was whether I had a boyfriend and not if I was gay. I said I have someone else in mind. My mom asked- who, Anuraag? So I said yes. And then the slow motion B rated Hindi movie scene started.
Dad paused his shaving for an instant and continued as if nothing had happened. My mom, sat down heavily, not knowing what to say. I left for college. By the time I came back, mom was in कोप भवन. Her first and strongest reaction was “How can you marry a non-Bengali?” In her mind it was clear that there were only two classes- Bengalis and the rest of them. And of course, Bengalis are the elite ones, how can anyone even think of competing with Rabindra Nath Tagore and Uttam Kumar, Shuchitra Sen, the literature and एकला चोलो रे and the rich history? How could I stoop low enough to give up the cultural heritage and other such blahs for matters of the heart? When I said it doesn’t matter to me- she could not believe her ears- are you my daughter? Is this the संस्कार that I taught you? Her next problem was “he is so dark, your kids will not be fair” Really ! She refused to eat for 3 days, I was crying in my room, she was crying in hers. My dad was mediating and cooking dishes trying to cool and feed both of us. Mom actually told my dad- she can’t go to college any more. And my dad laughed- you can’t do that, she is studying engineering. In next 3 days I tried several ways to get her to see reason- listing all the pros of my to-be-husband, why Bengali-panti was irrelevant to me, how I intended to survive without माछेर झोल, finally the only thing that worked was – I promise I am not going to run away to get married. I will only marry with your blessings and then she broke her fast-unto-whatever and started eating. After a few days, things became quite normal at home, except for some taunts that came out of nowhere, which I did my best to ignore. Little did I know what was brewing in her mind.
When Anuraag broke the news at his home, his mom’s reaction was even more lame “नमक लाना हैं तो माँ से पूछता हैं कौन सा , चला हैं लड़की पसंद करने” and finally- right now focus on studies, we will worry about these things later- which was probably the sanest thing to say. Her only issue with me was thatI came from a non-vegetarian family. Interestingly the fathers on the both the sides were very pleased with the liaison from day one – maybe it saved them some hard work of finding a suitor.
This episode I came to know much later – few years post marriage. My bro had come home for a week. He got all the juicy details from my mom, with her local flavor added. The whole family conspired behind my back and my big bro – decided to intervene to save the इज़्ज़त of his younger sister and मान-मर्यादा of the family. He went over to the Jodhpur court to meet Anuraag’s mom. (She was working as a judge). Her version of the story. She got a note that Jhilmil’s brother wants to meet her. She came out, a trifle apprehensive. And my bro gave it to her straight “आपके बेटे ने मेरी भोली-भाली बहन को फसाया हैं”. She responded in kind – “तुम्हारी बहन ने मेरे बेटे को फासा हैं” Corny dialogues of the same genre flew back and forth till they did not have anything more to throw. Finally they mutually agreed to find ways to keep us away from each other (the fact that we were classmates in college did not help them at all). My bro came home, exhausted with the outburst, but since they were fellow conspirators, he also added “But they are a pretty decent and educated family. Maybe we should really think this through.”
It took the families next two-three years to think things through. I left for my post grad. Anuraag took up a job somewhere in Rewari. Both parties were perversely delighted- now that the kids are away from each other- the infatuation will go away. They don’t know till date that Anuraag came every weekend to meet me at Delhi. After waiting unsuccessfully for a year for us to have a breakup, they finally yielded and the rest is history. Polite perseverance and determination worked wonders.
Ps. Some expressions only make sense in the mother tongue, hence I resort to it from time to time. Like आपके बेटे ने मेरी भोली-भाली बहन को फसाया हैं- is not at all the same as- your son is luring my innocent sister. Qed.
45 and not very romantically inclined these days, I had a first love too, which you may not believe by looking at me. I lived in a small town middle class home with big windows. I loved sitting in the window and reading, spent years at it- from Grimm’s to Enid Blyton to Sidney Sheldon. There were a number of low end shops right in front of the lane the windows overlooked and there was always a crowd of rowdy looking people there. One day I particularly happened to notice a guy in a shop staring at me. Like a well-bred daughter, I immediately looked away and concentrated on my book. But the age, the time and the desire, my eyes went back to him again, and so began the “आँखों ही आँखों मे”.
He was nothing great to look at (neither was I, for that matter) – from a distance of about 80ft across the lane, he appeared short, bespectacled, dark with a nice smile. The looks emboldened over weeks and graduated to smiles. And of course then the teenager starts dreaming of fairy tales and castles and the prince charming. It became a ritual (except for school days, you know), get up and open the window and wait for the shop to open, wait for the smile, (when his Dad was not around). My gullible mom noticed it soon enough to come and ask why I spent all the time on the window sill and I cooked some reasonable explanation. After a while the looks started to grow monotonous and there was a urge to go to the next logical step.
A few weeks later, I was walking down to my friend’s house, and the hero of my story followed me on a bicycle ( it was the 80’s phase and bicycle was in) and stopped me by the side of the road. I looked at him, my heart beating really fast. Giving someone the eye from a safe zone is one thing, and facing the challenge is quite another. He looked even darker and shorter close-up. He asked me something trivial- How are you kind of stuff. And me likewise and then we suddenly did not have anything more to talk about. So he said-in his-perfect-Marwari accent – I love you, ok and cycled on. And with that, trust me, the spell shattered.
The quick end of the mute love story as a result of the 3 magic words spoken because you have nothing else in common. Sigh, why did you have to open your mouth? Well, I did the next logical thing next day- closed the window on him slowly and deliberately (under the heavy influence of movies of that era) and stopped looking at him thereafter, and waited for my next love to come along. I don’t know his name till date.